Parents with a primary immune deficiency (PI) face certain challenges that other parents take in stride. Last week, I was at work when I got the dreaded call... [more]
Last night, my son came in the living room and said, “I love Tuesdays because we get to watch something fun and we always have popcorn,”... [more]
For parents looking to start a support group or for information regarding their child’s illness, Abbie Cornett, our patient advocate, can guide you through the process of creating a community support group. She can also help you develop a strategy to advocate for healthcare treatment or reimbursement issues.