Parents with a primary immune deficiency (PI) face certain challenges that other parents take in stride. Last week, I was at work when I got the dreaded call... [more]
Last night, my son came in the living room and said, “I love Tuesdays because we get to watch something fun and we always have popcorn,”... [more]
A list of community events for patients with childhood diseases and their families.
News & Events
2018 The next Reader Teleconference will be Thursday, December 6, 2018 @ 4 pm PST.
This teleconference, an open forum with our readers as our featured guests, will focus on Medicare coverage for primary immunodeficiency disorders and chronic inflammatory demyelinating polyneuropathy. Kris McFalls is a senior reimbursement manager with CSL Behring responsible for helping to resolve complex reimbursement issues that affect patient access to care. She has spoken at patient and professional events on the topic of reimbursement. Kris has been with CSL Behring for nearly seven years. Prior to working with CSL Behring, Kris was the patient advocate with IG Living. Additionally, Kris has worked as a volunteer for the Immune Deficiency Foundation. On a personal level, Kris has raised two sons with common variable immunodeficiency disease and is also patient with a primary immunodeficiency.
IG Living Reader Teleconference will connect you with others to get your questions answered from experts on a variety of topics related to living with a chronic illness.
To participate, complete the registration form to be added to our email invitation list.
PhD candidate Rene Thomas of Rush University Medical Center in Chicago, Ill., is conducting an international adolescent pain management study. Data collected will be used to address the lack of research on pain management in the adolescent population. Further, data will be used to inform healthcare professionals about relevant changes on how pain management is achieved.
The study is looking for teenagers between the ages of 13 years and 18 years who experience chronic pain. Participants who are eligible for the study and who complete the questionnaire will receive a $10 Amazon gift card. Those who complete an interview will receive a $15 Amazon gift card.